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[Chaotic]

Merhabalar arkadaşlar benim kuzenim Ahmet Mahmut Taşdemir. 29 yaşında beyin tümörü rahatsızlığı ile ankara bayındır hastanesinde yoğun bakımda yatıyor şu an. Durumu pek iyi değil. Doktorlar artık dilediğinizi yapabilirsiniz diyor.
Benim de aklıma yurtdışındaki tıbbi forumlara şöyle bir mesaj atıp yardım istemek geldi. Belki alternatif bir yöntem vardır diye.

Hello. My name is Emre. I am a civil engineer who lives in Izmir, Turkey.

I have a cousin. His name is Ahmet Mahmut Daşdemir. He is 29 years old. He is suffering from brain cancer for a few months. I am afraid it isnt going good thats why doctors said you can try anything you want.

I am copying the patient history report down. I hope any of you can show us a way. Anything.. We really need help. He doesnt want to die.

REPORT

Name & Surname of the Patient : DASDEMIR, AHMET MAHMUT
File Number : 2011014718
Department : Brain Surgery
Case Number : 0002816388
Case Admission-Discharge : 31.01.2012
Gender : M
Date of Birth : 15.12.1983
Insurer : CGM TURKIYE-EUREKO SIGORTA A.S.
R.o.T. Identity Number : 25286095816
Report Issue Date : 08.05.2012
ICD 10 Code : C71.5 – Cerebral ventricle malign neoplasm


Diagnosis : Intracranial Mass, 3rd and lateral intra-ventricle (Pathology Report Glioblastoma multiforme)

Operations : Surgical operation

Other Details : The patient who was admitted with complaint headache and vomiting 3 times was examined under cranial MRI at another center. MRI examination showed that 40x37x28 mm sized mass reaching from 3rd ventricle right posterior-lateral into the ventricle. When the patient was admitted to our department 10 days after the beginning of the complaints he was conscious, cooperative, oriented, and his pupils was isochoric IR+/+ with free eye movement. Examination of fundus showed that the patient whose bilateral papilla periphery was indistinct had no significant strength loss. The patient had bilateral dissymmetry and could not walk on a straight line. After examinations the patient was treated in anesthesia department and operated on 17.11.2011. Intra-ventricle tumor was removed. Post-operation the patient was extubated and taken to intensive care unit. The patient was conscious, cooperative and well oriented and his left upper and lower extremities have decreased to 4-5/5 level. The patient was transferred to service unit from intensive care unit on 18.11.2011. During service unit care, on 20.11.2011 the patient showed symptoms of absent mindedness and vomiting. Cranial CT examination showed 1.5 cm thick subdural hemorrhage in frontal section. Later on the patient was more alert; however he had a generalized attack on 22.11.2011. Cranial CT examination was conducted. It was seen that the patient had bilateral frontal parietal subdural effusion and he was taken into intensive care unit. The patient was taken to surgery on 22.11.2011 for subdural effusion drainage by bilateral burr-hole method. Hemovac drains were placed on both sides. Post-operation the patient was connected to respirator. Infectious Diseases unit started the patient on Vankomisin and Meronem. On 23.11.2011 cranial CT examination was conducted for control. It was seen that 3rd and lateral ventricle was wide. An external drainage catheter was placed from right frontal to right lateral ventricle. On 26.11.2011 the patient was re-intubated. Pulmonology department conducted a bronchoscopy on the patient. Vankomisin and Meronem were discontinued. The patient was started on Targocid and Tazosin. Patient was monitored while on respirator until 30.11.2011 when he was disconnected from respirator. On 01.12.2011 the patient was extubated. On 03.12.2011 the patient was conscious and responsive to vocal stimuli. He was able to pull both arms on vocal stimuli. Later on the patient intermittently became more and more sleepy. On 04.12.2011 a cranial CT examination showed epidural collection on right occipital. Right lateral ventricle was narrower compared to left. There was bilateral frontal subdural. On 05.12.2011 the ventricle drainage catheter on the right side was removed. A new external ventricle drainage catheter was placed from left frontal. Due to continuing sleepiness the patient was taken into surgery again on 07.12.2012 to remove infected epidural collection on occipital. A ventricular drainage catheter was placed from right parietal to right frontal. Post-operation the patient was taken into intensive care unit and connected to a respirator. On 11.12.2011 hemovac drain was removed. On 14.12.2011 the patient was disconnected from respirator. On 16.12.2011 the patient was reconnected to a respirator. The patient was intermittently disconnected from respirator for monitoring under system while the ventricle drainage catheter on the patient was also under closed monitoring. On 19.12.2011 bronchoscopy was repeated. On 20.12.2011 the patient extubated; but he was reextubated on 23.12.2012. Oxygen saturation decreased down to 80. Swelling was observed on right side of neck. The patient was diagnosed by pulmonology, cardiovascular surgery and anesthesia departments. Bronchoscopy was conducted. Following that oxygen saturation showed an increase. On 24.12.2011 the patient was disconnected from the respirator and monitored under T system. On 26.12.2011 a cranial CT examination was conducted, which showed a bilateral frontotemporoparietal subdural effusion. Ventricle drainage catheter was closed. Antibiotic treatment of the patient was continued due to meningitis and lung infection. On 02.01.2012 ventricle drainage catheter was removed. Later on the patient was found to be unresponsive to vocal stimuli. On 06.01.2012 a cranial CT examination of the patient showed extreme widening of 3rd and lateral ventricles. External ventricle drainage catheter from right frontal was placed again. While intubed and being monitored under T system a tracheotomy was applied on the patient on 12.01.2012. After the tracheotomy the patient was connected to a respirator and disconnected from the respirator on 13.01.2012. On 21.01.2012 ventricle drainage catheter was removed. The cranial CT examination conducted on 04.02.2012 showed bilateral frontopareital subdural effusion as well as widening on 3rd and lateral ventricles. Following that antibiotic treatment of the patient was readjusted according to advice of Infectious Diseases Department and the patient showed infection due to impression lesion on sacrum as well as repeating lung and urinary infection. The patient is still on Colomisin 2x 150 mg IV, Colomisin 2x 75 mg inhaler and Tazosin 3x 4.5 gr IV. The cranial MRI examination conducted on 05.04.2012 showed a 29x20x18 mm sized mass with heterogenic contrasting on 3rd ventricle posterior. 4th, 3rd and lateral ventricles were wide and a 9.6 mm subdural effusion was found on right frontal and a 6.3 mm subdural effusion was found on left frontal. On 07.04.2012 samples for BOS microscopy, culture and biochemical examinations (glucose, chlorine, protein) were collected from the patient by lumbar puncture. Following this antibiotic treatment of the patient was restarted to prevent infection of puncture point and lungs; however the patient’s flexor contractions increased. On 25.04.2012 lumbar puncture was repeated. Opening pressure was measured as 300 mm BOS. Antibiotics were discontinued on 06.05.2012. The patient is still unconscious, however his eyes open from time to time. The patient does not follow objects, however the shows flexor contractions. Due to tracheotomy the patient is being fed through a Nazo gastric catheter. Currently the treatment of patient is continued in the intensive care unit.


Prof. Dr. Tuncalp Ozgen
Brain Surgery Department
(Stamp & Signature)

Dr. M. Sertac YILDIRIM
Assistant to Chief of Medicine
Dip. Reg. No: 80550

Private Bayindir Hospital (190 68 208)
(Signature)
Signed and approved.
Spc. Dr. Hakan AKAN
Chief of Medicine




böyle bir mesaj atıyorum bulduğum yabancı tıp forumu sitelerine. epikriz dosyasının ingilizce tercümesi bu dosya. Eğer bildiğiniz forum siteleri isimleri varsa benimle paylaşırsanız çok memnun olurum.

[cihant]

abi geçmiş olsun inşallah bi çare bulunur da kurtulur,29 yaşındaymış bide.


yabancı tıp forumlarını iyi düşünmüşsün,bir de hastalığın evrelerini, testlerini, sonuçları fln ekleyip araştırma kliniklerine, tıp dergilerine, yabancı akademisyenlere fln göndersen birşey çıkabilir belki. geliştirme safhasında olan bi tedavi vardır belki, gönüllü olurak katılabilir fln. sadece forumlarla sınırlandırma bence

[HocaEfendi]

allah şifa versin.

[Chaotic]

teşekkürler.

nerelere gönderebilirim mesela?

[SeaGle]

mardox var forumda doktor. Ona özel mesaj ile ulaşmayı dene istersen biliyordur o tıp ile ilgili yabancı siteler ya da senin işine yarayabilecek türden yerler.

[reyou]

biri sunu eksi sozluk formatina getirebilirmi, orayada postlayalim..

[Archangel_]

taze beyin cerrahı, idealist bir abime yolladım mesaj olaraktan, geri dönerse paylaşırım

[reyou]

bide tweeter dan falanda paylasabiliriz sanirim eger hashtag falan olusturulmussa buraya yazin o sekilde paylasalim

[Chaotic]

arkadaşlar hepinize çok teşekkür ederim.

özel mesaj atan ve yardımcı olan arkadaşlara da çok teşekkür ederim.

yayabileceğim kadar yaymak istiyorum bu epikriz raporunu belki olası bir tedavi bilgisi olan vardır diye.

ekşisözlük için ne yapmam lazım?
twitter için de ne yapmam lazım bilgilendirirseniz çok memnun olurum.

ayrıca forum sitesi varsa lütfen link gönderebilirseniz çok sevinirim.

[reyou]

suraya koydum ama;

http://www.eksiduyuru.com/index.php?m=d&id=412645

iletisim bilgilerini yazarsan eklerim,
kaynak olarak burayi gosterdim.

[di]

Caresiz hissediyorsun muhtemelen lakin aradigini forumlarda bulma sansin cok dusuk. O yuzden ulasabilecegin, kendini kanitlamis doktorlara ulasmaya calisman daha mantikli olacaktir.

[reyou]

eksiden soyle bir mesaj gelmis;

said:

http://www.mskcc.org/contact-us
ama getirin derlerse, goturebilecek maddi imkaniniz var mi?

abi iletisim bilgilerini verde tel email falan koyayim oraya,
ben her zaman online olamiyorum direk seni ararlar

[BonePART]

abi id numaları felan war onnarı sil istersen

[roket adam]

abi çok geçmiş olsun ya, çok üzüldüm hakkaten. çok genç adam daha ya. umarım bir çaresi bulunur, tekrardan aranıza döner.

[Chaotic]

iletişim için

[email protected]
0532 748 45 03 bana ulaşabilirler direk olarak